Monday, October 25, 2010

Autism in the morning

If it wasn't a daily occurrence it might be hilarious. When it happened yesterday I did in fact just start laughing.

We have early risers. Our kids go to bed at 7 pm, and then wake up usually around 6 am give or take 30 minutes. I'm pretty certain any kid is annoying to a parent who has gone to bed at too late an hour because they had to either get stuff done they couldn't do during the day, or because they just wanted to enjoy some peace and quiet. I'm not saying I'm the only lucky mom privy to such nocturnal nonsense. Micah gets up at 6 am this morning, and wants to snuggle. Usually my snuggle rule is no earlier then  6:30 am, because once snuggling commences I can't sleep (mostly because Micah launches into a tirade of questions). Micah was so loud Ezra woke up also, and came into our room. I don't know why I think every day, that they'll just come and cuddle with us. Apparently I have no access to my memories in early waking hours that would help me think better of it. Ezra isn't capable of just lying still and snuggling unless he's really sick. He moves around like an octopus, can't lay still for more than 3 seconds. Today he didn't even come to snuggle, but instead looked out our window. This is what followed, and this is a typical autistic behavior. It's called an ism, and specifically a vocal ism, meaning he will do a thing repetitiously, without interacting.

Ezra: look mommy, the stars.
Mom: yes, it's night time. We should be sleeping. I hope he heard the hint in that.
Ezra: look, mommy, stars.
Mom: mhm
Ezra: look, mommy, stars
Mom: I don't care
Ezra: look, mommy, stars
Mom: this is so autistic. I wish he would start his isms after 7 am
Ezra: mommy, stars
Mom: Remember son-rise. Be supportive, be interested, join his ism
Ezra: mommy, stars
Mom: Yes, stars are out a night time
Ezra: look mommy, stars
Mom: Maybe I should try distraction Hey Ezra, why don't you go read a book in your room?
Ezra: silent for a moment Look mommy the stars
Mom: oh right. Distraction doesn't work. Whatever. I'll just ignore him. Maybe I should write a blog post about this and count how many times he says it.
Ezra: Look mommy, stars ...repeats it 38 times....then silence for 30 seconds...switch to other noise ism...starts bouncing a glass marble repetitively on the floor to hear the noise it makes
Mom: Why me? Do parents of normal children have to deal with this?
 

Ezra's Birthday

Where has September gone? And for that matter, October is almost over and here I haven't posted since August.
We celebrated Ezra's birthday recently. It was exciting to see Ezra finally understand what birthday's are about. Now he knows to expect a cake, presents, and a party. We delivered of course. His wish list kept getting longer and longer the closer we got to the event. Of course the flip side of the coin is that true to his autism he's not only excited about his birthday, he now asks to have a cake and party every day.

I have a few very gifted cake decorating friends. I always admire their creations and thought I'd give it creating a themed birthday cake for Ezra a shot. He's really into airports, runways, and planes right now, so I thought I'd try to make him an airport cake (at first I thought of making him a galaxy cake but with no food colorings, no can do). Turns out that a perfectionist with no cake decorating skills has no business in making themed cakes, unless she does the decorating way in advance, instead of spending the morning cursing at her misshapen project, instead of showering her birthday boy with love and affection. It also is less fun to decorate a cake when you can't use any food colorings. Although despite my gluten/casein/food color/preservative free creation he still melted down from all the sugar and had a really hard day after until the sugar left his system. The cake tasted fine though.




We spent the morning unwrapping gifts and playing with them. In the afternoon we went to Ezra's favorite playground to have a BBQ. The weather cooperated beautifully. We stayed out later than usual, so by the time we got home, Ezra was ready for sleep. Day over!